Submitted:
30 August 2025
Posted:
02 September 2025
You are already at the latest version
Abstract
Keywords:
1. Introduction
2. Materials and Methods
2.1. Design
2.2. Experience or Role of Researchers
2.3. Participants and Sampling
2.4. Data Collection
2.5. Data Analysis
2.6. Rigor and Trustworthiness
2.7. Ethical Considerations
3. Results
3.1. Participant Characteristics
3.2. Themes
3.2.1. Professionals
- Theme 1: Professional Training
- Theme 2: Hospital Environment
- Theme 3: Emotional Aspects
3.2.2. Parents
- Theme 1: Professional Training
- Theme 2: Hospital Environment
- Theme 3: Emotional Aspects
- Theme 4: Autism Spectrum Disorder
3.3. Co-occurrences
4. Discussion
5. Conclusions
Supplementary Materials
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Conflicts of Interest
Abbreviations
| ASD | Autism Spectrum Disorder |
| COREQ | Consolidated Criteria for Reporting Qualitative Research |
| DSM-5 | Diagnostic and Statistical Manual of Mental Disorders |
| EIR | nursing residents |
| HUMIC | Hospital Universitario Materno Infantil de Canarias |
| MIR | medical residents |
| MU | Meaning Units |
| TCAE | auxiliary nursing care technicians |
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| Professional | Gender | Age | Professional category | Years in pediatric emergency care |
|---|---|---|---|---|
| Professional 01 | Female | 39 | Pediatric nurse | 3 |
| Professional 02 | Female | 55 | Auxiliary nursing care technician | 1 |
| Professional 03 | Female | 60 | Pediatric nurse | 34 |
| Professional 04 | Female | 29 | Nursing resident-EIR | 1 |
| Professional 05 | Male | 24 | Nursing resident-EIR | 1 |
| Professional 06 | Male | 37 | Pediatricians | 9 |
| Professional 07 | Female | 31 | Auxiliary nursing care technician | 4 |
| Professional 08 | Female | 26 | Medical residents pediatricians-MIR | 1 |
| Professional 09 | Male | 26 | Medical residents pediatricians-MIR | 1 |
| Professional 10 | Female | 39 | Pediatricians | 14 |
| Parents | Relationship | Age | Marital status | Education level | Employment ж status | Number of children | Age of the child with ASD * |
|---|---|---|---|---|---|---|---|
| Parent 01 | Mother | 47 | Married | Secondary | Baby care store | 2 | Son: 16 ж Daughter: 9 |
| Parent 02 | Mother | 33 | Single | Secondary | Unemployed | 2 | 6 |
| Parent 03 | Father | 39 | Divorced | Secondary | Police | 1 | 5 |
| Parent 04 | Mother | 35 | Married | Secondary | Unemployed | 1 | 8 |
| Parent 05 | Mother | 49 | Single | Secondary | Waitress | 4 | 13 |
| Parent 06 | Mother | 37 | Married | Secondary | Nursing assistant | 2 | 9 |
| Parent 07 | Mother | 37 | Single | Secondary | Unemployed | 1 | 10 |
| Parent 08 | Mother | 27 | Single | Secondary | Waitress | 2 | 5 |
| Participants group | Themes | Subthemes | Meaning Units |
|---|---|---|---|
| Professionals | Professional Training | Approach Strategies | Intervention techniques, Use of pictograms, Virtual reality, Anesthesia, Clarity, Oral medication, Unnecessary examinations, Coping with trauma, Family collaboration, Nonverbal communication, Effective communication, Unmet needs, Health psychology, Toys, Inclusion of familiar objects, Observation, Touch, Importance of patient care, Healthcare professionals |
| Training Received | Self-reflection, Self-taught, Self-assessment, Inadequate training, Collaboration, Knowledge, Prior knowledge, Consideration of other factors, Conviction, Professional development, Lack of knowledge, Discontent, Experience, Lack of training, Insufficient training, Uncertainty, Insecurity, No knowledge, Optimism, Recognition of limitations | ||
| Perceived Needs | Adaptability, Individualized care, Child care, Patient care, Parental consideration, Efficiency of care, Quality of care, Lack of training, Infrastructure, Needs, Time, Material resources, Satisfaction, Conformity, Patient care, Waiting room, Communication difficulties. | ||
| Hospital Environment | Resource Allocation | Special care, Shortage, Comfort, Efficiency, Sensory stimulation, Patient needs, Material needs, Pictograms, Space | |
| Infrastructure | Pleasant environment, Controlled environment, Relaxing environment, Calm environment, Adequate environment, Inadequate environment, Not adapted, Waiting room, Triage, Adapted room | ||
| Perceived Needs During the Emergency Visit | Safe environment, Sensory-friendly environment, Well-being, Care and protection, Healthcare professionals, Audiovisual stimulation, Creative interests, Sensory toys, Light, Sensory needs, Noise, Adapted room, Safety, Personalized treatment | ||
| Emotional Aspects | Emotional Experience Related to Patient Care | Emotional conflict, Aggressiveness, Challenges, Empathy, Stress, Negative experiences, Frustration, Emotional impact, Discomfort, Patience, Patient satisfaction, Emotional sensitivity | |
| Professionals’ Personal Perceptions | Intervention strategies, Lack of resources, Lack of training, Interaction with children, Infrastructure, Professionalism, Stress, Emergency department, Waiting room | ||
| Parents | Professional Training | Perceptions of Staff Training | Anticipation, Family communication, Knowledge, Lack of knowledge, Misinformation, Diversity, Lack of adaptation, Lack of clarity, Lack of communication, Lack of understanding, Lack of training, Lack of updating, Staff training, Language skills, Ignorance, Training, No training |
| Demonstrated Emotional Competencies | Adaptation, Awareness, Social awareness, Empathy, Lack of empathy, Lack of humanity, Lack of sensitivity, Misunderstanding by others, Patience, Healthcare professionals, Respect | ||
| Socioemotional Relationships During Care | Conflict, Family conflicts, Challenges, Work-related difficulties, Social avoidance, Lack of adaptation to the child’s needs, Family intervention, Socioemotional judgment, Doctor–patient relationship, Family relationships, Interpersonal relationships, Resistance to rules, Family responsibilities, Sleep disorder, Language disorder | ||
| Hospital Environment | Infrastructure | Accessibility, Child-friendly environment, External environment, Inadequate environment, Restrictive environment, Noisy environment, Environment, Available space, Long waiting time, Impact of the environment, Impact of the environment on patient experience, Importance of a friendly environment in the emergency department, Physical limitation, Needs for a child-friendly environment, Room, Waiting room, Health system, Waiting time, Triage | |
| Perceived Needs During the Emergency Visit | Sensory stimulation, Auditory stimulus, Visual aid, Tactile stimulus, Visual stimulus, Communication with pictograms, Nonverbal communication, Visual communication, Inadequacy of protocol, Materials, Need, Need for emotional support, Need for training, Need for control, Need for apologies, Need for distraction, Regulated light, Need for more context, Need for recognition, Need for concrete solutions, Specific needs, Medical needs, Adapted needs, Children, Observation, Negative perception of the medical environment, Personalization, Staff preparation, Prioritization of needs, Proposal for improvement, Exclusive protocol, Recognition, Necessary resources, Relaxation, Adapted room, Patient service, Double A card | ||
| Emotional Aspects | Families’ Experiences | Lack of entertainment, Discontent, Fun, Waiting, Parental stress, Negative experience, Positive experience, Lived experience, Functionality, Injustice, Mistreatment, Complaint, Emotional overload | |
| Emotions During Care | Distress, Anxiety, Family anxiety, Service deficiencies, Poor customer care, Distrust, Desire, Desperation, Difficulty, Disagreement, Hope, Stress, Frustration, Impatience, Helplessness, Uncertainty, Discomfort, Misunderstanding by others, Dissatisfaction, Physical discomfort, Fear, Fear of doctors, Annoyance, Nervousness, Worry, Satisfaction, Feeling of helplessness | ||
| Autism Spectrum Disorder | Diagnostic Characteristics | Attachment, Nonverbal communication, Care, Child care, Atypical development, Language development, Early diagnosis, Communication difficulties, Associated illness, Strategies, Inability to concentrate, Child’s interests, Different needs, Diversified interests, Different needs, Lack of cooperation, Concern for the child’s well-being, Intolerance to noise, Sensory sensitivity, Suspected diagnosis, ASD | |
| Children’s Needs | Adaptability to patient needs, Individualized care, Family support, Communication with parents, Distraction, Strategies, Lack of visual support, Need for external support, Need for family support, Adapted needs, Children’s needs, Environmental needs, Physical needs, Inadequate needs, Material needs, Parental involvement, Asking what is needed, Occupational therapy | ||
| Sensory Regulation | Self-regulation, Visual aid, Sensory aids, Emotion control, Sensory dysregulation, Distractions, Entertainment, Muscle hyperlaxity, Hypotonia, Mobile phone, Pressure, Reactions to stimuli, Regulation, Emotional regulation, Relaxation techniques, Technology |
| Subthemes | A | B | C | D | E | F | G | H |
|---|---|---|---|---|---|---|---|---|
| Approach Strategies (A) | 0 | 1 | 7 | 2 | 0 | 1 | 7 | 3 |
| Training Received (B) | 0 | 5 | 4 | 0 | 1 | 3 | 1 | |
| Perceived Needs (C) | 0 | 1 | 4 | 2 | 5 | 5 | ||
| Resource Allocation (D) | 0 | 4 | 5 | 3 | 1 | |||
| Infrastructure (E) | 0 | 6 | 2 | 3 | ||||
| Perceived Needs During the Emergency Visit (F) | 0 | 1 | 2 | |||||
| Emotional Experience Related to Patient Care (G) | 0 | 1 | ||||||
| Professionals’ Personal Perceptions (H) | 0 |
| Subthemes | I | J | K | L | M | N | O | P | Q | R |
|---|---|---|---|---|---|---|---|---|---|---|
| Perceptions of Staff Training (I) | 0 | 11 | 3 | 4 | 11 | 3 | 7 | 8 | 4 | 1 |
| Demonstrated Emotional Competencies (J) | 0 | 3 | 2 | 11 | 7 | 12 | 6 | 2 | 1 | |
| Socioemotional Relationships During Care (K) | 0 | 3 | 2 | 5 | 7 | 4 | 2 | 1 | ||
| Infrastructure (L) | 0 | 11 | 11 | 13 | 7 | 7 | 4 | |||
| Perceived Needs During the Emergency Visit (M) | 0 | 12 | 17 | 13 | 10 | 7 | ||||
| Families’ Experiences (N) | 0 | 22 | 8 | 5 | 6 | |||||
| Emotions During Care (O) | 0 | 13 | 5 | 7 | ||||||
| Diagnostic Characteristics (P) | 0 | 7 | 8 | |||||||
| Children’s Specific Needs (Q) | 0 | 5 | ||||||||
| Sensory Regulation (R) | 0 |
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