More Results from Practice and Research Underpinning the Work on Joy
Joy is then about encouraging clients to be in charge, be it in a session, supervision, assessment or planning the day ahead, whereby conversations between two experts aim for future goals. Joyful therapeutic works are based on the principles of solution focused practice[
25] and incorporate some specific skills to go through a process of 1) identifying future hopes, 2) amplifying exceptions to past problems, 3) employing hypothetical and visualising tactics and 4) devising a pragmatic task that the client achieves usually after, or ‘in between’ sessions.
Figure 6 demonstrates the main skills we use from solution focused practice.
Our Joy (n) Us project is constantly guided by questions to foster our curiosity, like:
How do people with hidden dis/abilities experience Joy in everyday life?
What can we learn about the processes influencing their experiences of Joy?
What opportunities are there in mixing skills and abilities in everyday life?
How does Joy play a role in meaningful everyday activities and a sense of connectedness?
Working with health and social care practitioners (primarily nurses and social workers), service users with diverse needs, and clients in the private and non-profit care sector, we have had opportunities to pilot our method and start collecting feedback.
Figure 7 summarises the type of data we refer to in the article. Subsequent articles will explore in more detail the various elements of the Joy (n) Us Project, including evaluation.
For now, we want to continue exploring how Joy in our novel 6D-6SF practice offers a model for rethinking therapeutics. Anita’s supervision of staff caring for people with various cognitive and mental health conditions brought up some complex questions in our therapeutic approach and how well we prepare students and staff to deal with the unexpected characteristics of our practice. It is amazing and somewhat scary how our care files, assessments and theories dispose us into roles and approaches. There is no supervision that does not include such dilemmas or care files that describe in long sentences what our clients can’t do and why. Like Anna’s thick folder that dispose her into the role of an old lady with cognitive deficit unable to perform most of her enJoyable daily tasks like “she requires guidance to use water heater”, “she has severely limited recognition of risk”, “she cannot read or write”, “she has minimal concentration span”, “she has a poor understanding of what consists a healthy diet” and so on so for another 20+ pages. It requires skill to find some Joy and potential for dislocating her everyday activities, like “she can eat physically independently”, albeit that this is immediately followed by, “although as stated above has an inability to plan meals.” Health and social care therapeutics depend on our expertise to engage our clients so that they can walk in and, in the eyes of some professionals, be saved by therapies done unto them for them (professional issues 1-5). Such tension and contradiction between what these assessment files detail and the nuances of everyday life we have observed during the projects and supervisory work (professional issue 6) is evident. We experience rupture time and time again, sitting in supervision, listening to professionals, spending time with the clients and reviewing cases express the economical, ethical, political, and logical, the expected rational rather than those aesthetics and preferences showed and hoped for by clients, making it difficult to know the real world.
We will continue our second aim by framing and exploring how Joy as rupture is a type of hope in action and a central tenet of contemporary therapeutic practice that puts clients at the centre and focuses on solutions and achievable mundane goals. One that encourages clients to hypothesise, suspend belief and imagine informed and joyful futures. At its broadest and certainly within the scope of intellectual disability and autism practice, the aesthetics of Joy let practitioners employ the use all of senses, creativity and imagination through activities such as poetry, dance, singing, exercise, pottery, baking and some rather unusual activities, like when Kirsty initiates a conversation with a box of cookies in the shop in the hope that she can figure out which one wants to come home with her. Kirsty likes having joyful conversations with objects and all details of her everyday life, not only with humans. Our clients may also paint, write poems, and share Joy, as also seen at our workshops (see
Figure 4). This is a signifying level of connectedness not only with people but with dimensions of objects and everything else surrounding us that allows one to be real or imaginary, in solitude or with others. By employing Joy, the practitioner suspends judgment, assumptions and tried expertise. Such Joy is no different when we observe Anna with a mild intellectual disability doing her shopping despite all those things in her care file (professional issues 2-5). Although Anna can’t count or read the price tags in a way most would consider ‘normal’, and her shopping basket is less sophisticated than most (professional issue 1), watching her walking around the shop, selecting her favourite baked beans, potato, cheese and few more treats ending up almost spot on with a £40 bill that is precisely what she was given to spend, is Joy. Her pride, smile and confidence in her achievement are all the proof she requires. Those small things and nuances of life make all the distinction; no one else knows this better than our clients (professional issue 6).
Both Rob and Paul highlight the case of risks versus freedom (familiar to most practitioners and a recurring theme of our supervisions and therapeutic work) to the fore. How to balance the dispositioning protective and risk-averse professional codes with the dislocating energy and drive of meaningful activities? Support workers took Rob for a walk. He has a reduced ability to notice danger, so he must be accompanied. One day, as they were walking the Fens Pool Nature Reserve, Rob spotted horses that were often left tethered and without thinking, started running towards the animals, making noises, with his arms wide open. The carers panicked and their initial risk-averse mechanism kicked in, trying to prevent him and stop him. The event left the carers in a state that was brought to our supervision by Paul, who started a range of safeguarding conversations and risk assessments, including the escalation of Rob’s condition. Yet, there are alternatives, and we learnt one in our Joy (n) Us Workshop from a manager of a private home who spoke about the dislocating capacity of Joy and recognition that carers not knowing is not uncommon but should not be shamed. There are different dimensions of the contributing details that changed not only the dynamics of this event and other events, but also, as a chain reaction, everything following could have alternatives. All with one Joy-fuelled response from the manager: “Run with him”. In health and social care, we are so used to the negative language that we are in the process of developing the Joy audit, a tool to help practitioners run more with the client and stop them less. The curiosity of what happens when we experience running with the client (practice issue 6) in this instance won over the expert risks, theories and range of policies (practice issues 1-5).
Traditional therapeutics often want to cheer up sad people, get them out of their thoughts, and make them happy. The aesthetics of Joy, on the other hand, highlight how Joy, like hope and curious creativity, cannot be fully controlled, possessed or produced by will alone. This element of surprise maintains hope with a future focus on Joy. Our encounter with professionals, carers and family members suggests that they may think they know better than the client and other professionals, even if they are convinced that everything they do is in the best interests of the service users. Ironically, what none of them seem to see is that they all have diverse clients, so the moment you follow an off-the-shelf map as opposed to constantly creating and recreating it with your clients, you ultimately do good to some while letting down others. And here comes a paradox of therapeutics that we believe Joy can temporarily suspend. If our clients have the capacity to weigh information and make decisions, then no matter what approach we suggest, they will be able to resist (like our adolescent clients and their carers[
26]) and choose so that debates in disability studies and therapeutic practices lose their significance[
27,
28,
29]. On the other hand, if our clients do not have the capacity to access a wide range of information and make informed distinctions and rely heavily on our and others guidance, then we also have a problem as ultimately, no matter what we believe is the proper method, theory and all those tired and tested things we bring in as experts (those six professional issues), we manipulate our clients into our world and certain options, if we allow them choices at all. We know that many clients could not attend the Autism Group or come to the Joy (n) Us workshops as their carers have not passed on the information, presented in a way that reflected their ‘I do not want to go’ attitude, ‘it is too complicated for them’ and a number of other reasons.
Tom had moved to a new residence and two carers helped him settle. He was asked which tablecloth to use. He was presented with a choice of three. “Do you want the blue or the red dotted one?” Tom replied, “I don’t mind”, as he continued placing his favourite pictures on the shelf. The carer was not satisfied with the answer and asked Tom again. “Tell me, do you want the blue or the red dotted one on the dining table”? Tom responded with more frustration. “I do not mind. You can choose one for me.” The answer still was not good enough as the carer responded, “You have to choose.” Eventually, the carer gave up, expressing dissatisfaction with Tom’s behaviour. Clearly, the idea of not choosing was not one of the choices that this carer (and others) would consider a choice. Hence, we are inspired to use Joy more in the therapeutic world, to put our theory into practice, and accept that clients can indeed be experts in their lives, or at least, to guide the therapist in conversations between experts.
DiscussionAbout Putting Joy to Work
In our work, we are more than aware of the standard training manuals, guides and directives underpinning therapeutic work that we have already started interrogating through the lens of Joy and summarised here as six professional issues (see
Figure 8). In order to expand upon the practicalities of Joy and offer six strategies to add some Joy, we continue to ask questions. Do we need something to go wrong, malfunction and be abnormal in order to use therapeutics? Do we need a problem to be curious about our clients? Do we need to be unhappy or dissatisfied to aim for better outcomes? The ongoing debates regarding normalising tendencies may appear to be, medically speaking, ‘common sense’, but as we discussed in other articles[
26], it is just as much an analysis of a symbolic act for our work. The problem with such modernist and essentialist views is their tendency to be grounded in constant comparison to a perceived norm. As such, material bodies, abstract persons, and structured societies are easily perceived as existing separately[
30,
31], as reflected in mainstream medical and social approaches in therapeutics, giving birth to experts.
Traditional approaches generally fail to recognise how curiosity and its relationship with Joy is best encouraged and preserved through any number of odd and illogical tactics which when analysed in terms of the 6D PAM incorporate techniques like ‘problem free ideals’, ‘coping questions’, ‘resource and future focused ethos’, ‘competency based’, ‘collaboration and exchange’, ‘brief trajectory’, ‘witnessing immensity’, ‘indirect methods’ and ‘formulaic strategy’ adopting an ‘expert and pathology free stance’ (see
Figure 6). Conversational ideals are those representing a desire to increase collaboration, employ non-expert practices and indirect methods neglected by most other approaches. We note how the notion of joyful simplicity itself is, in fact, complex! As such, it is easy to see how ‘keeping things simple’ can undermine much contemporary therapy that has to justify itself economically, logically and of course ethically and politically. Even the aesthetics of Joy are sometimes hard to fathom and discuss, as we have shown in the case studies, and as such, it is easily recognisable how professionals are warned to stay in their lane, stick to their agreed training strategies and diagnostic criteria. As a result, the chance of recognising and putting Joy and curiosity to work was reduced from the start.
To further the discussion, we note how the concept of health and well-being itself has traditionally been divided into at least three parts: the medical, the social and the psychological. Words, methods, and approaches have subsequently been used to position and even hijack what defines and determines one compared to another. Whilst all therapies should aim to achieve the whole again, well-being, as defined by the WHO[
32], “a state of complete physical, mental and social well-being and not merely the absence of disease or infirmity”, it appears we have lost our tools to do so, to put the pieces together again. In the process, we have also forgotten how to make our clients experts in their lives. Put it simply, Joy wants to change this trajectory. In particular, and if anything, being curious and attempting to elevate the usefulness of Joy shows up how Feynman’s claim[1] that in a scientific world that is obsessed with measurements, facts and experts, “I have approximate answers and possible beliefs and different degrees of uncertainty about different things, but I am not absolutely sure of anything and there are many things I don’t know anything about”. Such should be the case in our professional practice, be it history taking, selecting a fitting theory or arriving at our decisions in the form of a best guess at any given moment. Feynman continues: “I don’t feel frightened not knowing things, by being lost in a mysterious universe without any purpose, which is the way it really is as far as I can tell.” Joy, curiosity and surprise bring something similar into our practice. So how can we embrace this not knowing and mysterious space of Joy?
In
Figure 9, we introduce six simple ideas of the transformative dynamics of Joy for health and social care practitioners and therapists to help them employ Joy more in their therapeutic work.
First, while we often think of happiness when we describe Joy, Joy has a much broader potential. Joy does not require us to be happy in the traditional sense of the word. In fact, Joy allows us to do Joy when the situation is challenging rather than to be Joy or to feel Joy. Joy is a hopeful and constructive state of existence, yet it does not require us to employ traditional positive psychology. Joy is not simply a thought, emotion or feeling either. It follows that, second, clients who are struggling can be motivated by Joy as the situation in that Joy is neutral, it is neither right nor wrong and capable of adapting to cultural differences, including race, gender, cognitive abilities and religious beliefs. The idea that Joy is a doing and experiencing and therefore aims to offer some pragmatic outcomes, the use and value of Joy can be seen in its rejection of passivity. You can’t think or talk yourself out of a situation, but you can Joy forward. Third, Joy then acts to contradict and unite unusual oppositions and comparisons, like the aforementioned happiness and sadness. Joy connects the head and the logical with the heart and the illogical helping us move away from traditional approaches of separation and fragmentation and get closer to the ideals of a whole and holistic view of our wellbeing. Fourth, we do not have to put ourselves into others’ shoes either. Such cases show how we can Joy(n) (join) others’ Joy without empathy, as Joy is now a verb, not a feeling or emotion. Joy allows us to experience rather than do what is expected of us. Fifth, we can have Joy of past events of yesterday’s cooking, do Joy in the present, like writing this article, and work towards Joy in the future, such as my holiday in 20 days’ time. Joy does not require a direct external object or person, we can experience Joy for no apparent reason, even if Joy is often experienced together. And six, Joy does not require a qualitative or quantitative judgment from others. Joy brings aesthetics, curiosity and the potential to use all our senses with no limits on how we want to express and experience. No more age-appropriate expectations and judgements.
Now we can rethink the economics, ethics, logic and politics of Joy to further enhance our case in debates where such considerations matter. The ethics of Joy helps dislocate and suspend hasty conclusions and automatic decisions to let alternatives enter the therapeutic space that are usually the reserve of lucid and rational intentions. As a starting point and a connector, which can happen with details of others and in places with subjective objects and abstracts. To ignore its relevance is to hamper or at least deny the prospect that for some client, Joy is the experience of their own arms rather than those of the therapist holding them, keeping them contained and protected from the opposite of Joy, which we suggest is things like hate or confines. Plus, there are the economics of Joy. If we produce Joy, consume Joy, value Joy or monetise Joy, then Joy as a form of future-focused hope remains adaptive, motivational, with the intention to work towards goals and it might be easier to assimilate such demands in therapeutic work and care plans when it comes to the economics of meaningful everyday activities and connectedness. Joy connects the theoretical with the practical in real time. The logical dimensions of Joy dictate that while it may be challenging to define, it also gives us the opportunity to experiment with the space Joy creates about the typical narratives of self and others. Hence, Joy can be viewed as resistance to tested theories, logic, coherence and rationality. Everyday life is full of hopeful moments of hectic, unpredictable and fluctuating events, and so are therapeutic sessions and our clients’ aims. These are the fleeting and commonly overlooked moments when clients say things. Still, due to the politics of Joy, their seeming irrelevance is not picked upon by therapists or rejected on the basis of assumed expertise. Assumed expertise is such a dimension that habitually dispositions the clients. Joy helps us move away from traditional approaches, expertise and models like tokenism. The political dislocation of Joy invites a sharing of things we hope to experience rather than necessarily expect.