Submitted:
13 August 2024
Posted:
14 August 2024
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Abstract
Keywords:
1. Introduction
2. Materials and Methods
2.1. Establishment of the Study Procedure
2.2. DARE-Inclusive Design Framework
- Level 1 (L1) focuses on accessibility and is linked to industry regulations. L1 follows market-driven reform policies and neoliberalism principles, which suggest that market forces can self-regulate. Designs under L1 aim to meet minimum standards to remove barriers.
- Level 2 (L2) emphasizes increased engagement and positive emotions, promoting equitable access and fair relationships guided by social justice principles. Rooted in social justice, L2 seeks to validate users' experiences through empathy and understanding of how products impact their everyday lives.
- At Level 3 (L3), a minimal mismatch between users and design is ideal. L3 focuses on empowered success through positive design, emphasizing human flourishing and the complete inclusion of all individuals [40]. Users experience a state of flow, enjoying profound immersion in tasks with harmonious interaction between themselves and the environment, enabling fluid and creative interaction with their physical and social environment [20].
2.3. Development of Interview Guidelines and Questions
2.4. Recruitment and Study Population
2.5. Data Collection
- Broad questions (e.g., experiences, definition of disability, etc.).
- What is your thought on the adjustment of environments and MAs for clients’ needs? And how might they be improved?
- How do clients perceive their bodies and disability? How do they compare their body before and after disability challenge?
- How do clients see their MAs and environment? Are there any mismatches between their expectations and the existing situation?
- How can the technology influence the client's decision to accept or refuse a prescribed MA?
- How do clients feel about social activities and participation? How do culture and social context affect their perceptions?
- How do clients deal with potential social challenges? And what they do to improve their social participation?
2.6. Data Analysis
2.7. Ethics
3. Results
- 1.
- Perceived Financial Value: Assessing Worth
- 8.
- Objective Enhancements: Optimizing Environments and MAs (Technological and ergonomics optimization in MAs; Enhancement of accessibility in private and public settings).
- 9.
- Subjective Enhancements: Trustworthiness, Support, and Hope (Fear and shyness in the usage of MAs in public settings; Desire for empathy from family and physiotherapists).
- 10.
- Contextual Factors: Interpretations and Representations (Causes of disability and inclusivity perceptions; Lack of aesthetic polish in MA design)
3.1. Theme 1: Perceived Financial Value: Assessing Worth
3.2. Theme 2: Objective Enhancements: Optimizing Environments and Mas
3.3. Theme 3: Subjective Enhancements: Trustworthiness, Support, and Hope
3.4. Theme 4: Contextual Factors: Interpretations and Representations
4. Discussion
4.1. Limitations and Future Studies
5. Conclusion
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
References
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| 1 | The Iran-Iraq
War was referred to as the "Imposed War" and the "Holy
Defense" in Iran due to its perception as a defensive struggle against
aggression [46]. |

| Years of experiences | Interview time (Min) | Working experiences and profession category |
|---|---|---|
| *S=234, **A=18.14 (min-max:8-25) | S=840, A=70 (min-max:50-90) | Private clinic (N=4), health care centre (N=2), home visiting (N=1), state welfare organization (N=2) hospital (N=3), national medical committee of the Olympics (N=2). |
| Quote (Q) # | Perceived Financial Value: Assessing Worth. |
|---|---|
| Q1 | Most assistive devices are affordable…However, if an orthosis were to be individually prepared by an orthotist during rehabilitation, it will certainly be more expensive for clients than mass-produced ones. |
| Q2 | …The economic factor is important in prescribing a solution [suggesting an MA].... It should not impose a financial burden on the individual…. A suitable price of MAs greatly influences the decision to accept or reject the product. |
| Q3 | The complaint was that the price we paid did not correspond to the period of use... I [user] paid a fee, but after a month of use, it is not washable, nor are the parts replaceable. This is a common complaint. |
| Q4 | …It is not fair for clients to endure fatigue or face potential tragedies just for not affording an orthosis…. Eventually, they have no choice but to accept the basic and inexpensive models of MAs. |
| Q5 | In developing societies where there is economic fluctuation, the clients often say: You've never been in my shoes to understand the financial strain it puts on me…. |
| Q6 | …It is difficult to pay for something that you didn't need to pay for before [mobility]. They [clients] often compare their current situation to their past. |
| Q7 | Producers' recommendations for user-friendliness are often related to their profit motives rather than focusing on research on users, development, and improving clients' health…. |
| Q8 | In a society like Afghanistan [A neighbouring country of Iran], or impoverished cities within Iran, despite a weak economy and poverty, people sometimes address their needs with minimal resources, such as wooden handmade canes, which are locally crafted. |
| Quote (Q) # | Objective Enhancements: Optimizing Environments and MAs |
|---|---|
| Q13 | The whole city can be a ground for constant complaints from disabled individuals…. Despite employing fanciest architectural style, like the fancy stairs, the slope is so steep that the wheelchair may overturn. |
| Q14 | …Being mindful of the environment for people with disabilities shows respect for their needs.... When users [MA users] see this effort, it boosts their self-confidence. But in places where nothing is set up for disabilities, everything seems to treat them (MA users) like a burden, leading to feelings of shame and helplessness that are seen on their faces. |
| Q15 | Their [clients] reaction is anger and finally yield and ask for help…. Our [physiotherapists] approach is moderating dissatisfaction or justifying shortcomings. |
| Q16 | In terms of anthropometry, there is limited variation in the sizing of these products [MAs] within our country [Iran]. Sizes are typically limited to small, medium, and large…. |
| Q17 | Ergonomics and environmental adaptation are important…. However, equipment from other countries may not always be suitable for the new environment [Iran]. |
| Q18 | It is very important to use a material that reduces the weight of the MAs. |
| Q19 | One of the factors is the lightness of the material…. The material used must be lightweight yet strong enough to carry the muscles and skeleton of the body. |
| Q20 | We need to have some devices [MAs] that show a sense of trust and functionality for a long time. …The feeling of relying on such device gives [to MA users] a peace of mind. |
| Q21 |
Sometimes the users complain about the long-time seating and lack of suitable structure of conventional wheelchairs with a sturdy material.…To reduce pressure, they add sponge foam padding. They complain so much that some refuse to use the product. They insist, asking if there's another way [for recovery]. |
| Q22 | Technology can have a significant impact, ranging from 20% to 40%. Especially for those who resist using MA [wheelchair]. |
| Q23 | The beauty of assistive products can influence MA users’ preference by 30-40%, which is significant for us [physiotherapists]. This is especially true for children and young people, where appearance matters a lot. |
| Q24 | Embellishments can motivate them to accept continued use over time. It may also affect their social interpretation…In my opinion, the best colors are vibrant and warm colors. There should be color variations and users' subconscious should like the color. The design of the work and clinic space should motivate people and do not remind them of their troubles. …We have to bring something into the clients' eyes that has a good effect on the patient's emotions. …The sense of touch is very important, for example, the roughness of the seat, and the coldness of the material should be taken into considerations. |
| Quote (Q) # | Subjective Aspects: Trustworthiness, Support, and Hope |
|---|---|
| Q25 | Sometimes they are unsure if relying on these devices will provide adequate support for movement. For example, they ask, "Is this device robust enough to carry me? |
| Q26 | …It [lack of trust to MAs] is rooted in their self-confidence. ...Timid individuals often try to hunch over and walk slowly and take great care. It is rooted in fear and anxiety. …Mental and psychological factors are very effective [in perception of the disability]. |
| Q27 | In an unsuitable environment, MAs can be perceived as an insult [for users], leading to feelings of shame and helplessness, like the sense of fear and shame after falling downstairs |
| Q28 | Once they are disappointed, they state it [MAs] is useless and consider it as a burden. That is why they may consider the MAs as an excessive gadget…. |
| Q29 | They are very open and receptive to the treatment process and respond: I will use whatever assistive device [MAs] you [physiotherapist] recommend. ...They continuously check their progressof rehabilitation. ...A trusting relationship with their doctor enhances clients' levels of hope. Sometimes clients trust their physiotherapists even more than their religious assumptions. |
| Q30 | Sometimes clients get nervous and depressed…they are upset with their own families and do not like to get help from them. They say: don't bother me. If the depression is severe and persistent, the patient may even contemplate suicide…. Without hope, they gradually face challenges and may engage in risky behaviors. |
| Q31 | Sometimes clients feel they have become a burden on their family. …For example, I have a client who feels embarrassed and ashamed when his wife and family bring him to physiotherapy. |
| Q32 | Regarding social participation, they feel shy and don't want to use assistive devices in public. |
| Q33 | Depression is a significant social challenge for them [clients]... If they believe they won't recover or regain a normal life, it leads to feelings of despair. ...When clients seem to have lost hope, they may refuse to cooperate with their physiotherapist. |
| Quote (Q) # | Contextual Factors: Interpretations and Representations |
|---|---|
| Q34 | They sigh. They believe that this [mobility disability] is a form of retribution and punishment for their past actions…. |
| Q35 | …Social, accessibility, and work environment issues, along with cultural differences, appearance [MAs] and clothing styles can affect the fit and perception of MAs, potentially exacerbating the patient's [clients] condition and reproducing the meaning of "I am a patient."… This interpretation [being dis/abled] may differ between rural areas, where disability is more associated with negative stereotypes, and the larger urban society. |
| Q36 |
Being socially perceived as a hero is different from being a fugitive or accused. Being [socially] accepted as someone whose fingers were cut off [according to religious law] for theft and someone whose finger is injured like Hans Brinker [Refers to Mary Mapes Dodge's novel about a boy who saves Amsterdam by plugging a dike leak with his finger] is very different. ...For instance, someone disabled due to an unsafe car or road often blames society and views themselves as a victim. …Owning a crutch or wheelchair from wartime, even if it's no longer necessary, serves as a heroic symbol for the individual–embodying qualities of courage, selflessness, and determination…. |
| Q37 | Products [MAs] should be designed to confer prestige rather than limitations…. |
| Q38 | …They [Clients] believe they're alone in their illness, unaware that others require assistance too…However, we can encourage them to persevere by offering support and empathy. |
| Q39 | [User] are most reluctant to use these devices due to societal negative attitudes and pity…. |
| Q40 | …The decline in individual independence, especially in social and financial areas, significantly affects clients' likelihood to use MAs. |
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