Submitted:
24 December 2025
Posted:
25 December 2025
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Abstract

Keywords:
1. Introduction
2. Materials and Methods
2.1. Study Design
2.2. Participants and Recruitment
2.3. Outcomes
2.4. Data Analysis
Quantitative Data Analysis
Qualitative Data Analysis
Data integration
2.5. Ethics Approval
3. Results
3.1. Data Trends & Respondent Characteristics
3.2. Quantitative Analysis
3.3. Qualitative Analysis
3.4. Integration of Quantitative and Qualitative Findings
4. Discussion
5. Conclusions
Author Contributions
Funding
Institutional Review Board Statement
Informed Consent Statement
Data Availability Statement
Acknowledgments
Conflicts of Interest
Abbreviations
| MCI | Mild Cognitive Impairment |
| NPS | Net Promoter Score |
| IAM4all | Information Assessment Method for patients and consumers |
Appendix A
Appendix A.1
| Themes | Subthemes | Description | Examples of quotes |
|---|---|---|---|
| Feedback & Thoughts on the Lesson | |||
| Positive feedback and appreciation | General appreciation | Responses expressing general appreciation for the lesson. | “Keep up excellent work!” “It was helpful and presented with respect and knowledge. Thanks” |
| Appreciation for accessibility of information | Responses expressing appreciation for being able to access the information in the lesson. | “I really appreciate that this information is provided free of charge as I am on a very limited pension and just cannot afford courses available around ageing issues that are given by local seniors groups.” | |
| General appreciation for the team / portal / website | Responses that indicate appreciation for the present lesson, as well as other information available through the McMaster Optimal Aging Portal. | “Your website & email alerts are very informative & empowering. Thank you for continuing to post your research & helping us help ourselves to age well.” “The Optimal Aging Program is excellent, and I have recommended this program to many of my peers. The lessons are easy to understand and very informative.” |
|
| Informative content/new knowledge | Responses indicating the respondent learned new information or gained new knowledge from the lesson. | "Although a RN, I have been retired for over 12 yrs. I did have some updates about Cognitive Decline it has been a while. So, I learned some new things." “I was very interested to learn that symptoms of dementia may be indicative of other health issues. I now have a better understanding of the diagnosis process.” |
|
| Clarification of terminology | Responses indicating the lesson clarified differences between terms for the respondent (typically differences between MCI and dementia). | “Becoming more knowledgeable on the difference between dementia and MCI (which I believe I am currently suffering from). Thank you very much!” “English is my second language. My husband was diagnosed with dementia. The geriatric doctor seen by my husband never explained the mild cognitive impairment, so my family and I, aren't sure about exactly his diagnosis. thanks,” |
|
| Insight into one’s own cognitive health | Responses indicating the lesson provided insight into the respondent’s own cognitive health. | “I suspected that my forgetfulness was associated with the grief of recently losing my husband. I think I may be suffering from mild depression. I have enrolled in a grief course” “Have been diagnosed last week…the test conformed what I learned last week.” |
|
| Credibility and trust | Responses indicating that respondents feel that the lesson is credible and trustworthy, and that they value this. | “I'm new to the Portal and exploring what it offers, but I'm very impressed so far. In particular, the information cuts through the usual 'sponsored' items often accessed online. It gives me greater confidence the information is objective and science-based, unencumbered by unseen financial goals.” “Thank you, I find this website very informative and information I can trust” |
|
| Lesson format | Responses expressing appreciation for the format or delivery method of the lesson content. | “I like the idea of telling about Russ and catching up with his situation at the end. It made it relatable and applicable.” “The rhythm of the speaker's voice is at a great pace, and this makes understanding a lot better.” |
|
| Credibility and trust | Responses indicating that respondents feel that the lesson is credible and trustworthy, and that they value this. | “I'm new to the Portal and exploring what it offers, but I'm very impressed so far. In particular, the information cuts through the usual 'sponsored' items often accessed online. It gives me greater confidence the information is objective and science-based, unencumbered by unseen financial goals.” “Thank you, I find this website very informative and information I can trust” |
|
| Suggestions for improvement | Technical | Responses indicating dissatisfaction or suggesting improvements for technical aspects of navigating the lesson. | “I am not computer savvy, and was frustrated at not being able to find a "submit button." After several tries using the icons below the lesson, I discovered the check mark was the submit button.” “More instructions for advancing the variety of screens would be helpful for some people.” |
| Format / Presentation of content | Responses indicating dissatisfaction or suggesting improvements for the way that information was presented in the lesson. | “It would be useful to have the option of a different format for this info as well e.g. seeing the information in a non-repetitive way with option of reading slides - or even just a list of bullet points - to avoid having to click through slides and listen to narration. The format was a bit overproduced and slow but overall, the information is good! Yay McMaster” “The session was easy to navigate except for title pages which I think involved unnecessary pauses and could have simply been the title of the new topic or page.” |
|
| Minor edits to syntax | Responses suggesting edits to phrasing of certain aspects of the lesson or survey. | "#4 should be reviewed - I put 'well', but I would've put 'sort of well' if there had been an option that allowed that." | |
| Request for additional details / topics | Responses indicating a desire for additional details or information on additional topics. | “It would be helpful to have info on how to be diagnosed, e.g. family doctor or facilities offering specialized testing. So, generally: resources.” “List a bibliography of research/data to handle stages of MCI and how to adapt/handle each stage. Thank you.” |
|
| Reported Impacts of Completing the Lesson | |||
| Emotional Impact | Reassurance and relief | Responses indicating the respondent felt relieved or reassured after completing the lesson. | “This was reassuring to me that I don't have any signs of dementia, (yet).” “It gave me a better understanding of the aging process and to identify the subtle changes as we grow older without being alarmed.” “Still doing professional work as a writer, editor and teacher at a high level, but worried at my lessening patience with day-to-day hassles. Lesson was reassuring I do not have MCI” |
| Motivation and proactivity | Responses indicating the respondent felt more motivated to take action on their health after completing the lesson. | “This information encourages me to maximize every opportunity available: to do all I can, while I can.” "Motivate to continue with prevention measures already in place as long as possible." |
|
| Fear and anxiety | Responses indicating the respondent felt fearful or anxious about MCI after completing the lesson. | “I found it frightening.” “It made me scared and nervous” |
|
| Personal health management | Self-monitoring and awareness | Responses which indicate intent to monitor one’s own cognitive health. | “Helps me assess the things I. Can expect with normal aging and confirms that my approach to exercise, diet and other activity is correct.” “I will try to be more aware of any changes in my daily life and seek help before things get worse.” |
| Seek additional screening/testing/healthcare | Responses which indicate intent to discuss concerns with a healthcare professional, or seek screening or testing. | “I think I will speak to my family doctor about my memory and word retrieval problems.” “I will talk to my Dr about tests” |
|
| Seek out additional learning on own | Responses which indicate intent to seek out additional information beyond the lesson. | “I will research about arterial and vascular improvement.” “I will investigate MoCa, MMse nd toxic proteins on-line” |
|
| Encouraged to make lifestyle changes | Responses which indicate intent to make lifestyle changes. | “I have learned that my depression can affect my memory. I know I have to improve my diet, become more social and challenge myself to engage in more physical activities.” “Put big effort into maintaining healthy lifestyle - diet exercise, also to daily practice routines that strengthen my memory ie exercise. establish diary + daily entries;” |
|
| Community engagement and social involvement | Responses which indicate intent to increase community engagement or social involvement. | “I'm encouraged to continue my new interest in learning classical guitar WITH a few new friends. Sustainable, social and enjoyable activities. Finding activity-based friendships is KEY! Helps with joy and motivation. Also, this presentation has encouraged me to walk up to join our local Senior Centre for Tuesday mornings "Fun Bridge". As researchers you know that we are experiencing an epidemic of loneliness and isolation and increasing dementia with the Baby Boomers. Your presentations are therefore very timely and critical.” “Need to explore community programs / discussions which would encourage engagement and offer support .” |
|
| Coping strategies | Responses which indicate intent to develop coping strategies or skills. | “Although I take medication for depression & anxiety I still suffer as my spouse of 58 years as he ages becomes more argumentative and controlling. There is no getting away from this situation so I must learn coping skills. Thank you” “Recent concern about memory loss, searching for coping strategies…” |
|
| Planning and preparation | Daily routine and organization | Responses which indicate an intent to change their daily routine and organization to retain function or slow cognitive decline. | “research better ways and /or a routine to handle banking, household tasks, community events; to initiate a daily routine; for example, establish a timetable for daily tasks ie read newspaper daily, read emails daily, review banking information daily, read newspaper daily - keep up to date on personal banking, personal business and economic issues in short term, long term. Develop a strategy for myself should my situation deteriorate. Each day, follow suggestions to maintain cognitive well-being.” |
| Long-term planning | Responses which indicate an intent to develop a long-term plan or arrange affairs in the case of cognitive decline. | "Develop a strategy for myself should my situation deteriorate." "Do a Will and decide on power of attorney." |
|
| Sharing and educating others | Sharing information with family and friends | Responses which indicate intent to share the lesson or its content with family or friends, often out of a desire to reassure or educate those who are concerned they may have MCI or dementia. | “I am sending this to my sister, whose husband may have early MCI. Have watched the stress it is causing in her family, especially as other family members cope with another member who has a diagnosis of dementia. It helped understand why the other family member can have a diagnosis of dementia, and still be fairly "with it", but unable to complete ADLs etc.” “Will help me help others I know who are worried about this subject” |
| Educating clients | Responses which indicate the respondent’s intent to share the lesson or its content with their clients, in a non-healthcare professional capacity. | “Educate clients.” “Apply, with better understanding, to senior fitness classes I teach (training with Canadian Centre for Aging & Activity); guide conversations to help people understand the differences” |
|
| Healthcare professional use | Responses which indicate the respondent’s intent to share the lesson or its content with patients, in their role as a healthcare professional. | "To educate my patients and their families." “I will recommend it to patients” |
|
| Supporting loved ones | Providing support to loved ones | Responses which indicate the respondent will use the information to tangibly support loved ones who may have MCI or dementia. | “Very helpful in my work assisting a relative who has severe dementia, and another, also aged, relative who may have MCI.” “I have a neighbour who exhibits speech loss and memory loss, and I want to know as much as possible to help her with these losses. Thank you for this information.” |
| Understanding loved ones’ cognitive health | Responses which indicate the lesson helped the respondent to better understand the cognitive health of their loved ones. | “To better understand my sister's diagnosis and how it affects her interactions with other” “This was very informative and easy to understand. My father-in-law had Alzheimer’s and I didn’t understand all the potential causes and impact. Helpful for my future and other loved ones!” |
|
| Encourage loved ones to take action | Responses which indicate an intent to encourage loved ones to take action to assess or improve their cognitive health. | "Get professional (e.g., MD) to do further testing (e.g., CT scan & MRI) for a family member." “I will encourage a family member to see a doctor regarding some mild cognitive decline that I think should be investigated.” |
|
| How Respondents were Made Aware of the Lesson | |||
| Self-initiated interest | Self-initiated information seeking | Responses which indicate the respondent arrived at the lesson as a result of significant personal interest. | "I always keep an eye on the information from your portal - it’s a wealth of valuable significant knowledge and I appreciate being able to access good information!" “I am presently part of the MacM3 aging study. I'm very interested in how aging affects me and in maintaining good health.” |
| Digital communication | Email and newsletter referrals | Responses which indicate the respondent was made aware of the lesson through email or newsletter. | "The link was included in a Seniors NL biweekly newsletter." "I subscribe and receive emails." |
| Community and organizational referrals | Community and organizational links | Responses which indicate the respondent was made aware of the lesson through a community group or organization. | "Link from retired persons' association." |
| Referral from McMaster University of affiliates | McMaster affiliation | Responses which indicate the respondent was made aware of the lesson through a person or organization affiliated with McMaster. | "Was a member of the senior's gym at McMaster." “My sister is Journalist at McMaster and suggested this portal. To me this was a comfortable way to gain more insight into cognitive decline. Thank you.” |
| Referral from personal circle | Referral from family and friends | Responses which indicate the respondent was made aware of the lesson by their family or friends. | "Family suggested this portal." “Friend” |
| Referral from professional | Responses which indicate the respondent was made aware of the lesson by someone in their professional life. | “Supervisor” | |
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| Variables | Responses, n (%) |
|
What do you think about this information? Check all that apply. This information: (N = 984) | |
| taught me something new | 649 (66%) |
| reassured me | 478 (49%) |
| allowed me to validate what I do or did | 455 (46 %) |
| motivated me to learn more | 429 (44%) |
| refreshed my memory | 230 (23%) |
| I did not like this information or a part of this information | 46 (5%) |
|
Please tell us how you will use this information. Check all that apply. I will use this information to: (N = 970) | |
| better understand something | 690 (71%) |
| discuss with someone else | 496 (51%) |
| do things differently | 245 (25%) |
| do something | 208 (21%) |
| other | 135 (14%) |
|
Please tell us which benefit(s) you are expecting. Check all that apply. This information will help me to: (N = 984) | |
| improve my health or well-being | 603 (61%) |
| be less worried | 519 (53%) |
| improve the health or well-being of a family member or friend | 358 (36%) |
| handle a problem or the worsening of a problem | 340 (35%) |
| prevent a problem | 199 (20%) |
| decide something with someone else | 194 (20%) |
| Other | 69 (7%) |
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