Submitted:
16 August 2024
Posted:
16 August 2024
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Abstract
Keywords:
1. Introduction
2. Materials and Methods
2.1. Design
2.2. Participants
2.3. Intervention
2.3.1. Dementia Training Course
2.3.2. Follow-Up Learning Activity
2.4. Outcome Measures
2.4.1. Surveys
- Questions on demographics and clinical practice included age, gender, professional roles, primary workplace, years of practice and number of people with dementia they had treated in the last 12 months.
- Dementia knowledge was evaluated using the Dementia Knowledge Assessment Scale (DKAS) [26], a reliable and validated 25-item scale designed to measure knowledge about dementia. The scale comprises four subscales, delineating knowledge characteristics across four domains: a) Causes and characteristics, b) Communication and behaviour, c) Care considerations, and d) Risks and health promotion. The DKAS yields a total summative score ranging from 0 to 50. Each item is scored, with 0 denoting an incorrect response to a factually true or false statement and 2 indicating a correct response. Subscale scores and the total score provide insights into the depth of understanding regarding specific aspects of dementia knowledge and overall dementia knowledge, respectively. A higher score signifies a more comprehensive understanding of the subject.
- Attitudes and confidence towards dementia were assessed using the General Practitioners’ Attitudes and Confidence towards Dementia Survey (GPACS-D) [27]. This 15-item scale is a reliable and validated tool that measures GP’s confidence and attitudes in relation to dementia. The survey encompasses three subscales, namely a) Attitude to Care, b) Engagement, and c) Confidence in Clinical Ability. Participants rated each item on a Likert scale, where 1 indicated "strongly disagree," 3 "neither agree nor disagree" and 5 "strongly agree." Subscale average scores range from 1 to 5, and the total average score ranges from 3 to 15. Higher subscale and total scores signify more positive attitudes and greater confidence regarding the specific aspect of dementia care and overall dementia care, respectively.
- Perceptions regarding rehabilitation for individuals with dementia were assessed using a specially designed 16-item Dementia Rehabilitation Scale Questionnaire. It was developed by the research team and informed by current evidence [5,6,7,8,9] (Appendix A). Participants rated each item on a Likert-scale ranging from 1 to 5 (1 indicating "strongly disagree", 3 "neither agree nor disagree" and 5 "strongly agree"). The total summative score, indicative of perception strength, spans from 16 to 80. A higher score reflects a more positive perception towards dementia rehabilitation.
- Agreement with four Likert-scaled statements: 1) Much can be done to support people with dementia to maintain their independence in everyday activities; 2) I know which allied health professionals in my area provide therapy for people with dementia to help them maintain their independence for as long as possible; 3) I feel confident to discuss dementia reablement and rehabilitation therapies with my patients with dementia; 4) I feel confident my referrals to health professionals will be accepted for people living with dementia. Participants rated each item on a Likert-scale ranging from 1 to 5 (1 indicating "strongly disagree", 3 "neither agree nor disagree" and 5 "strongly agree").
- f) Confidence in understanding allied health professional roles for dementia. Ratings range from 0 to 10 (0=I know nothing, 10=I know very well). A higher score signifies more confidence in understanding the roles of allied health professionals.
2.4.2. Focus Groups
2.5. Data Analysis
3. Results
3.1. Dementia Training Course
3.2. 4-Month Survey and Focus Group
3.2.1. Training Impact
- Knowledge gain
- 2.
- Building confidence
- 3.
- Intention to change practice
3.2.2. Useful Dementia Training Course Components
3.2.2.1. Discovery of the Dementia Rehabilitation Program
3.2.2.2. Systematic Way of Assessment
3.2.2.3. Role of Allied Health Professionals
3.2.3. Perceived Barriers to Referral
3.2.3.1. Administrative Burden, Patient Complexity and Time Limitation
3.2.3.2. Difficulty Accessing Allied Health Services
3.2.4. Perceived Enablers or Solutions for Referral
3.2.4.1. Electronic Templates and Alerts
3.2.4.2. Collaborative Approach to Paperwork
3.2.4.3. Facilitation of Referral Process through Practical Assistance and a Referral Coordinator
3.2.4.4. Streamlined Information via HealthPathwaysTM
3.2.5. Suggestions for the Wider Improvement of Dementia Care Training
3.2.5.1. Promoting a Multidisciplinary Approach
3.2.5.2. Education and Training for Informal Carers and Support Workers
4. Discussion
5. Conclusion
Supplementary Materials
Author Contributions
Funding
Institutional Review Board Statement
Informed consent statement
Data availability statement
Guidelines and Standards Statement
Conflicts of Interest
Appendix A
| Strongly disagree | Disagree | Neither agree or disagree | Agree | Strongly agree | |
| 1. Rehabilitation is aimed at improving function for people only after a specific acute event like a stroke or a hip fracture | 1 | 2 | 3 | 4 | 5 |
| 2. People with dementia are unable to engage in rehabilitation | 1 | 2 | 3 | 4 | 5 |
| 3. Allied health professionals can help reduce carer partner stress | 1 | 2 | 3 | 4 | 5 |
| 4. Nothing can be done to keep people with dementia engaged in meaningful activities | 1 | 2 | 3 | 4 | 5 |
| 5. If a person with dementia is having difficulty with an activity, support should be organised to do it all for them. | 1 | 2 | 3 | 4 | 5 |
| 6. Interventions should support the person with dementia to continue activities that are meaningful to them | 1 | 2 | 3 | 4 | 5 |
| 7. Exercise may slow cognitive decline in people with dementia | 1 | 2 | 3 | 4 | 5 |
| 8. Exercise can improve physical function and mobility in people with dementia | 1 | 2 | 3 | 4 | 5 |
| 9. The only role of occupational therapy for people with dementia is home safety and driving assessments | 1 | 2 | 3 | 4 | 5 |
| 10. It’s important for people with dementia to remain mentally and socially active | 1 | 2 | 3 | 4 | 5 |
| 11. Memory and cognitive strategies can support functional activities in the mild to moderate stages of dementia | 1 | 2 | 3 | 4 | 5 |
| 12. A combination of exercise and home hazard modifications can reduce risk of falls in people with dementia | 1 | 2 | 3 | 4 | 5 |
| 13. The only role of a speech pathologist in dementia is to manage swallowing difficulties | 1 | 2 | 3 | 4 | 5 |
| 14. Psychologists can help people with dementia manage grief associated with a diagnosis | 1 | 2 | 3 | 4 | 5 |
| 15. Cognitive rehabilitation can improve activities of daily living and maintain relationships for people with dementia | 1 | 2 | 3 | 4 | 5 |
| 16. Communication practice, aides and strategies can help support communication for people with dementia and their care partners | 1 | 2 | 3 | 4 | 5 |
| Scoring: Add scores (taking note of the reverse scored items 1, 2, 4, 5, 9 and 13) for each item to derive the total score. A higher total score indicates a better perception towards dementia rehabilitation. | |||||
References
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| n=17 | |
|---|---|
| Age (years)-Mean (SD) | 51.9 (9.3) |
| Gender- n (%) - Female - Male |
13 (76.5) 4 (23.5) |
| Professional role-n (%) - General practitioner - Practice nurse |
14 (82.4) 3 (17.7) |
| Primary workplace-n (%) - General practice clinic - Residential aged care facility - Community health service |
13 (76.5) 2 (11.8) 2 (11.8) |
| Years of practice-Mean (SD) | 21.4 (11.5) |
| Work hours per week-Mean (SD) | 29.3 (9.4) |
| Number of people with dementia treated in the last 12 months-n (%) - 1-5 - 6-10 - 11-15 - 16-20 - More than 20 - None |
5 (29.4) 5 (29.4) 1 (5.9) 3 (17.7) 3 (17.7) 0 (0) |
| Undertaken post-graduate training in dementia (Yes)-n (%) | 1 (5.9) |
| Know about their Primary Health Network’s Dementia Pathway (Yes)-n (%) | 4 (23.5) |
| Referred people with dementia to allied health professionals in the last 12 months (yes)-n (%) | 10 (58.8) |
| Allied health professional dementia referrals in the last 12 months-n (%) out of the n=10 that responded yes to the prior question - Physiotherapy - Occupational therapy - Speech pathology - Psychology - Exercise physiology - Other (e.g. Podiatry, Dietetics) |
9 (90) 8 (80) 5 (50) 5 (50) 4 (40) 6 (60) |
| Pre-course (N=17) | Post-course (N=17) | Relative changea (%) | Absolute change (co-efficient) Robust (95% CI) |
Focus group participants post-course (N=8) | Focus group participants at 4 months (N=8) | Relative changeb (%) | Absolute change (co-efficient) Robust (95% CI) |
|
|---|---|---|---|---|---|---|---|---|
| DKASc-Mean (SD) | 41.8 (4.2) | 46.8 (2.0) | 12.1 | 5.1 (3.2, 6.9)* | 47.5 (0.9) | 45 (3.5) | -5.3 | -2.5 (-5.2, 0.2) |
| DKAS subscalesd-Mean (SD) - Causes and characteristics - Communication and behaviour - Care considerations - Risk and health promotion |
10.4 (2.5) 9.1 (1.3) 11.1 (1.6) 11.3 (1.2) |
13.6 (1.1) 9.4 (0.9) 11.9 (0.5) 11.9 (0.5) |
31.9 3.9 7.4 5.2 |
3.3 (2.0, 4.6)* 0.4 (-0.4, 1.1) 0.8 (-0.01, 1,7) 0.6 (0.1, 1.1)* |
14 (0) 9.5 (0.9) 12 (0) 12 (0) |
12.5 (2.3) 9.3 (1.5) 11.8 (0.7) 11.5 (0.9) |
-10.7 -2.6 -2.1 -4.2 |
-1.5 (-3.5, 0.5) -0.3 (-0.9, 0.4) -0.3 (-0.9, 0.4) -0.5 (-1.3, 0.3) |
| GPACS-De- Mean (SD) | 10.6 (1.4) | 11.7 (1.0) | 10.1 | 1.1 (0.4, 1.7)* | 12.2 (0.9) | 12.6 (0.8) | 3.3 | 0.4 (-0.01, 0.8) |
| GPACS-D subscalesf-Mean (SD) - Attitude to Care - Engagement - Confidence in Clinical Ability |
4.3 (0.9) 3.6 (0.9) 2.7 (0.7) |
4.7 (0.3) 3.4 (0.7) 3.7 (0.5) |
8.1 -7.7 37.2 |
0.3 (-0.1, 0.8) -0.3 (-0.7, 0.1) 1.0 (0.7, 1.3)* |
4.8 (0.3) 3.7 (0.8) 3.8 (0.6) |
4.7 (0.4) 4 (0.6) 4 (0.5) |
-2.1 9.0 4.5 |
-0.1 (-0.2, 0.02) 0.3 (-0.01, 0.7) 0.2 (-0.3, 0.6) |
| Dementia Rehabilitation Scale Questionnaireg-Mean (SD) | 68.4 (6.3) | 74.8 (4.9) | 9.4 | 6.4 (4.4, 8.5)* | 75.3 (4.9) | 73.4 (4.6) | -2.5 | -1.9 (-5.1, 1.3) |
| Much can be done to support people with dementia to maintain their independence in everyday activitiesh-Mean (SD) | 4.4 (1.0) | 4.8 (0.4) | 7.9 | 0.9 (0.03, 1.7)* | 4.8 (0.5) |
4.5 (0.5) | -5.3 |
-1.1 (-3.4, 1.2) |
| I know which allied health professionals in my area provide therapy for people with dementia to help them maintain their independence for as long as possiblei-Mean (SD) | 2.1 (0.9) |
3.8 (1.0) |
77.4 |
3.1 (1.6, 4.6)* | 3.8 (0.9) |
3.4 (1.1) |
-9.9 | -0.8 (-2.2, 0.7) |
| I feel confident to discuss dementia reablement and rehabilitation therapies with my patients with dementiaj-Mean (SD) | 2.2 (1.0) |
4 (0.4) |
78.6 |
4.9 (1.7, 8.1)* | 4 (0.5) |
4.4 (0.5) |
9.5 |
1.7 (-0.3, 3.6) |
| I feel confident my referrals to health professionals will be accepted for people living with dementiak-Mean (SD) | 3.1 (1.3) |
4.1 (0.7) |
32.1 |
1.6 (0.5, 2.8)* | 4.1 (0.6) |
4 (1.1) |
-3.2 |
0 (-1.8, 1.8) |
| Confidence in understanding allied health professional roles for demential-Mean (SD) | 6.5 (1.5) | 8.1 (1.0) | 24.9 | 2.4 (0.8, 3.9)* | 7.9 (1.1) | 7.9 (0.8) | 0 | -0.1 (-2.1, 1.9) |
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