Preprint Article Version 1 Preserved in Portico This version is not peer-reviewed

Quality of life of colorectal cancer survivors: Mapping the key indicators by expert consensus and measures for their assessment

Urška Smrke
* ORCID logo ,
Sara Abalde-Cela
,
Catherine Loly
,
Jean-Paul Calbimonte
ORCID logo ,
Liliana R. Pires
,
Simon Lin
ORCID logo ,
Alberto Sánchez
,
Sara Tement
,
Izidor Mlakar
* ORCID logo
Version 1 : Received: 3 April 2024 / Approved: 3 April 2024 / Online: 3 April 2024 (15:36:33 CEST)

How to cite: Smrke, U.; Abalde-Cela, S.; Loly, C.; Calbimonte, J.; R. Pires, L.; Lin, S.; Sánchez, A.; Tement, S.; Mlakar, I. Quality of life of colorectal cancer survivors: Mapping the key indicators by expert consensus and measures for their assessment. Preprints 2024, 2024040308. https://doi.org/10.20944/preprints202404.0308.v1 Smrke, U.; Abalde-Cela, S.; Loly, C.; Calbimonte, J.; R. Pires, L.; Lin, S.; Sánchez, A.; Tement, S.; Mlakar, I. Quality of life of colorectal cancer survivors: Mapping the key indicators by expert consensus and measures for their assessment. Preprints 2024, 2024040308. https://doi.org/10.20944/preprints202404.0308.v1

Abstract

Quality of life (QoL) assessments are integral to cancer care, yet their effectiveness in providing essential information for supporting survivors varies. This study aimed to elucidate key indicators of QoL among colorectal cancer survivors from the perspective of healthcare professionals, and to evaluate existing QoL questionnaires in relation to these indicators. Two studies were conducted: a Delphi study to identify key QoL indicators and a scoping review of questionnaires suitable for colorectal cancer survivors. Fifty-four healthcare professionals participated in the Delphi study's first round, with 25 in the second. The study identified two primary QoL domains (Physical and Psychological) and 17 subdomains deemed most critical. Additionally, a review of 12 questionnaires revealed two instruments assessing the most important general domains. Findings underscored a misalignment between existing assessment tools and healthcare professionals' clinical priorities in working with colorectal cancer survivors. To enhance support for survivors' QoL, efforts are needed to develop instruments that better align with the demands of routine QoL assessment in clinical practice.

Keywords

quality of life; surveys and questionnaires; adult oncology; colorectal cancer survivors; Delphi study; scoping review; expert consensus

Subject

Medicine and Pharmacology, Clinical Medicine

Copyright: This is an open access article distributed under the Creative Commons Attribution License which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

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