Final Validation of the Quality of Life after Brain Injury for Children and Adolescents after Traumatic Brain Injury (QOLIBRI-KID/ADO) Questionnaire

von Steinbuechel, N.; Zeldovich, M.; Timmermann, D.; Krenz, U.; Koerte, I.K.; Bonfert, M.V.; Berweck, S.; Kieslich, M.; Henrich, M.; Brockmann, K.; Buchheim, A.; Roediger, M.; Lendt, M.; Auer, C.; Neu, A.; Kaiser, A.; Driemeyer, J.; Greving, S.; Wartemann, U.; Pinggera, D.; Thomé, C.; Suss, J.; Muehlan, H.; Cunitz, K. Final Validation of the Quality of Life after Brain Injury for Children and Adolescents (QOLIBRI-KID/ADO) Questionnaire. Children 2024, 11, 438. von Steinbuechel, N.; Zeldovich, M.; Timmermann, D.; Krenz, U.; Koerte, I.K.; Bonfert, M.V.; Berweck, S.; Kieslich, M.; Henrich, M.; Brockmann, K.; Buchheim, A.; Roediger, M.; Lendt, M.; Auer, C.; Neu, A.; Kaiser, A.; Driemeyer, J.; Greving, S.; Wartemann, U.; Pinggera, D.; Thomé, C.; Suss, J.; Muehlan, H.; Cunitz, K. Final Validation of the Quality of Life after Brain Injury for Children and Adolescents (QOLIBRI-KID/ADO) Questionnaire. Children 2024, 11, 438.

Abstract

Until recently, no disease-specific health-related quality of life (HRQoL) instrument existed for pediatric traumatic brain injury (TBI). In this revalidation study, the psychometric properties and the validity of the final German version of the 35-item QOLIBRI-KID/ADO questionnaire were examined in 300 children and adolescents. It is the first self-reported TBI-specific instrument for measuring pediatric HRQoL in individuals aged 8–17 years. The six-factor model fits the data adequately. Internal consistencies were excellent for the total score and satisfactory to excellent for the scale scores. Intraclass correlations indicated good test-retest reliability. Construct validity was supported by overlaps between the QOLBRI-KID/ADO and the PedsQL, which measures generic HRQoL. Discriminant validity indicated that HRQoL was significantly lower in older children and girls, and in those with anxiety, depression, and post-concussion symptoms than in comparison groups, replicating the results of the questionnaire’s first development study. Our results suggest that the QOLIBRI-KID/ADO is a valid and reliable multidimensional instrument for assessing disease-specific HRQoL after pediatric TBI in clinical and research settings, which can additionally be used across the lifespan in combination with the adult version. This may help to improve care, treatment, daily functioning and HRQoL after TBI.

Keywords

health-related quality of life (HRQoL); pediatric traumatic brain injury (TBI); QOLIBRI-KID/ADO

Subject

Medicine and Pharmacology, Pediatrics, Perinatology and Child Health

Copyright: This is an open access article distributed under the Creative Commons Attribution License which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

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