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Reference Values for the German Version of the Quality of Life after Brain Injury in Children and Adolescents (QOLIBRI-KID/ADO) from a General Population Sample
Krol, L.; Hagmayer, Y.; Steinbuechel, N.V.; Cunitz, K.; Buchheim, A.; Koerte, I.K.; Zeldovich, M. Reference Values for the German Version of the Quality of Life after Brain Injury in Children and Adolescents (QOLIBRI-KID/ADO) from a General Population Sample. J. Pers. Med.2024, 14, 336.
Krol, L.; Hagmayer, Y.; Steinbuechel, N.V.; Cunitz, K.; Buchheim, A.; Koerte, I.K.; Zeldovich, M. Reference Values for the German Version of the Quality of Life after Brain Injury in Children and Adolescents (QOLIBRI-KID/ADO) from a General Population Sample. J. Pers. Med. 2024, 14, 336.
Krol, L.; Hagmayer, Y.; Steinbuechel, N.V.; Cunitz, K.; Buchheim, A.; Koerte, I.K.; Zeldovich, M. Reference Values for the German Version of the Quality of Life after Brain Injury in Children and Adolescents (QOLIBRI-KID/ADO) from a General Population Sample. J. Pers. Med.2024, 14, 336.
Krol, L.; Hagmayer, Y.; Steinbuechel, N.V.; Cunitz, K.; Buchheim, A.; Koerte, I.K.; Zeldovich, M. Reference Values for the German Version of the Quality of Life after Brain Injury in Children and Adolescents (QOLIBRI-KID/ADO) from a General Population Sample. J. Pers. Med. 2024, 14, 336.
Abstract
Assessment of health-related quality of life (HRQoL) after pediatric traumatic brain injury (TBI) has been limited in children and adolescents due to a lack of disease-specific instruments. To fill this gap, the Quality of Life after Traumatic Brain Injury for Children and Adolescents (QOLIBRI-KID/ADO) was developed for the German-speaking population. Reference values from a comparable general population are essential for comprehending the impact of TBI on health and well-being. This study examines the validity of the German QOLIBRI-KID/ADO in a general pediatric population in Germany and provides reference values for use in clinical practice. Overall, 1997 children and adolescents aged 8-17 years from the general population and 300 from the TBI population participated in the study. The questionnaire was tested for reliability and validity. A measurement invariance (MI) approach was used to assess the comparability of the HRQoL construct between both samples. Reference values were determined by percentile-based stratification according to factors that significantly influenced HRQoL in regression analyses. The QOLIBRI-KID/ADO demonstrated strong psychometric properties. The HRQoL construct was measured largely equivalently in both samples, and reference values could be provided. The QOLIBRI-KID/ADO was considered reliable and valid for assessing HRQoL in a general German-speaking pediatric population, allowing for clinically meaningful comparisons between general and TBI populations.
Keywords
reference values; general population; patient-reported outcome measure (PROM); health-related quality of life; children and adolescents; traumatic brain injury
Subject
Social Sciences, Psychology
Copyright:
This is an open access article distributed under the Creative Commons Attribution License which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.