Preprint Review Version 1 Preserved in Portico This version is not peer-reviewed

A Gastroenterologist’s Guide to Care Transitions in Cystic Fibrosis from Pediatrics to Adult Care

Version 1 : Received: 28 September 2023 / Approved: 29 September 2023 / Online: 29 September 2023 (10:43:47 CEST)

A peer-reviewed article of this Preprint also exists.

Patel, D.; Baliss, M.; Saikumar, P.; Numan, L.; Teckman, J.; Hachem, C. A Gastroenterologist’s Guide to Care Transitions in Cystic Fibrosis from Pediatrics to Adult Care. Int. J. Mol. Sci. 2023, 24, 15766. Patel, D.; Baliss, M.; Saikumar, P.; Numan, L.; Teckman, J.; Hachem, C. A Gastroenterologist’s Guide to Care Transitions in Cystic Fibrosis from Pediatrics to Adult Care. Int. J. Mol. Sci. 2023, 24, 15766.

Abstract

Cystic Fibrosis is a chronic disease affecting multiple systems including the GI tract. Clinical manifestation in patients can start as early as infancy and vary across different age groups. With the advent of new highly effective modulators, the life expectancy of PwCF has improved significantly. Various GI aspects of CF care such as nutrition are linked to the overall improvement in morbidity, lung function, and quality of life of PwCF. The variable clinical presentations and management of GI diseases in pediatrics and adults CF should be recognized. Therefore, it is necessary to ensure efficient transfer of information between pediatric and adult providers for proper continuity of management and coordination of care at the time of transition. The transition of care is a challenging process for both patients and providers and currently, there are no specific tools for GI providers to help ensure smooth transition. In this review, we aim to highlight the crucial features of GI care at the time of transition and provide a checklist that can assist in ensuring an effective transition and ease the challenges associated with it.

Keywords

Cystic Fibrosis; transition of care; pediatrics; Gastrointestinal care; Pancreatic enzyme; highly effective modulators

Subject

Medicine and Pharmacology, Gastroenterology and Hepatology

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