Version 1
: Received: 21 July 2021 / Approved: 22 July 2021 / Online: 22 July 2021 (17:37:03 CEST)
How to cite:
Rivera, D.; Jukkala, A.; Mistretta, K.; Starke, W. Development and Pilot Testing of the Transgender and Gender Diverse Fertility Preservation Knowledge Scale. Preprints2021, 2021070524. https://doi.org/10.20944/preprints202107.0524.v1
Rivera, D.; Jukkala, A.; Mistretta, K.; Starke, W. Development and Pilot Testing of the Transgender and Gender Diverse Fertility Preservation Knowledge Scale. Preprints 2021, 2021070524. https://doi.org/10.20944/preprints202107.0524.v1
Rivera, D.; Jukkala, A.; Mistretta, K.; Starke, W. Development and Pilot Testing of the Transgender and Gender Diverse Fertility Preservation Knowledge Scale. Preprints2021, 2021070524. https://doi.org/10.20944/preprints202107.0524.v1
APA Style
Rivera, D., Jukkala, A., Mistretta, K., & Starke, W. (2021). Development and Pilot Testing of the Transgender and Gender Diverse Fertility Preservation Knowledge Scale. Preprints. https://doi.org/10.20944/preprints202107.0524.v1
Chicago/Turabian Style
Rivera, D., Katherine Mistretta and Willa Starke. 2021 "Development and Pilot Testing of the Transgender and Gender Diverse Fertility Preservation Knowledge Scale" Preprints. https://doi.org/10.20944/preprints202107.0524.v1
Abstract
Little is known about fertility preservation within the TGD community. Few receive adequate counseling placing them at risk for decision regret. The goal of this project was to develop, and pilot test the Transgender Fertility Preservation Knowledge Scale (TFPKS) to support the development and evaluation of health education resources. A community engaged; cross sectional retrospective design was used. Participants (n=189) provided information describing demographics, healthcare decision-making preferences, experiences/knowledge of fertility preservation, and treatment decision regret. The sample included 189 TGD adults. Most were white and aged 26-35 (33.3%) and not offered a consultation (73.0%). Many (41.2%) report they would have participated if offered. Knowledge regarding fertility preservation to support this desire was low. Most participants identified a patient-centered (69.4%) decision making preference. Much remains to address the healthcare inequities within the TGD population regarding fertility preservation. Overall participants had low levels of knowledge to support decision making. Further, healthcare system and individual barriers to fertility preservation remain prevalent. A foundational step towards addressing these disparities, is the identification of a valid and reliable instrument to measure TGD knowledge of fertility preservation.
Keywords
transgender; fertility preservation; decision making preferences
Subject
Medicine and Pharmacology, Immunology and Allergy
Copyright:
This is an open access article distributed under the Creative Commons Attribution License which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.