Preprint Article Version 1 Preserved in Portico This version is not peer-reviewed

Development of a Needs-Based Essential Care Service Package for Institutional Dementia Care in China

Version 1 : Received: 30 January 2021 / Approved: 1 February 2021 / Online: 1 February 2021 (11:24:37 CET)

How to cite: Sun, T.; Meng, H.; Zhu, M.; Dong, X.; Tu, N.; Sun, N.; Jia, R. Development of a Needs-Based Essential Care Service Package for Institutional Dementia Care in China. Preprints 2021, 2021020011 (doi: 10.20944/preprints202102.0011.v1). Sun, T.; Meng, H.; Zhu, M.; Dong, X.; Tu, N.; Sun, N.; Jia, R. Development of a Needs-Based Essential Care Service Package for Institutional Dementia Care in China. Preprints 2021, 2021020011 (doi: 10.20944/preprints202102.0011.v1).

Abstract

Alzheimer’s disease and related dementias (ADRD) remain a public health challenge in developing counties. We developed a needs-based essential care service package (ECSP) for care planning of persons living with dementia (PLWD) using a cross-sectional survey among PLWD in institutions in six cities in China (n= 1,299). Face-to-face interviews were conducted with caregivers of PLWD by trained staff between 2018 and 2019. Care service needs and utilization by the level of cognitive impairment were summarized. The average age of PLWD was 80.7 years. 76% of participants had severe cognitive impairment. The needs-based ECSP with 30 service items would be sufficient in supporting care services of PLWD in China, of which seven items are core care. The selection plan for ECSP at different levels is designed as “General Care Services + Selective Care Services”, in which service items for low-, mid-and high-level care for PLWD are 7+3, 7+6, and 7+10, respectively. The findings provide the first large-scale data on service needs and utilization of PLWD in mainland China. The ECSP for PLWD advanced in the paper was a practicable and effective quantitative management means. It is deserved to application in a large scale.

Keywords

Elderly with dementia; needs; utilization; essential care service package; long-term care system; health policy

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