Version 1
: Received: 23 May 2024 / Approved: 23 May 2024 / Online: 23 May 2024 (14:17:58 CEST)
How to cite:
Chuluunbaatar-Lussier, E.; Boulter, T.; Vohra, S.; Shetty, R.; Houle, S.; Bray, R.; Kerr, K.; Nacul, L. Development of Epidemiological Research Guidelines for Myalgic Encephalomyelitis / Chronic Fatigue Syndrome in Canada. Preprints2024, 2024051571. https://doi.org/10.20944/preprints202405.1571.v1
Chuluunbaatar-Lussier, E.; Boulter, T.; Vohra, S.; Shetty, R.; Houle, S.; Bray, R.; Kerr, K.; Nacul, L. Development of Epidemiological Research Guidelines for Myalgic Encephalomyelitis / Chronic Fatigue Syndrome in Canada. Preprints 2024, 2024051571. https://doi.org/10.20944/preprints202405.1571.v1
Chuluunbaatar-Lussier, E.; Boulter, T.; Vohra, S.; Shetty, R.; Houle, S.; Bray, R.; Kerr, K.; Nacul, L. Development of Epidemiological Research Guidelines for Myalgic Encephalomyelitis / Chronic Fatigue Syndrome in Canada. Preprints2024, 2024051571. https://doi.org/10.20944/preprints202405.1571.v1
APA Style
Chuluunbaatar-Lussier, E., Boulter, T., Vohra, S., Shetty, R., Houle, S., Bray, R., Kerr, K., & Nacul, L. (2024). Development of Epidemiological Research Guidelines for Myalgic Encephalomyelitis / Chronic Fatigue Syndrome in Canada. Preprints. https://doi.org/10.20944/preprints202405.1571.v1
Chicago/Turabian Style
Chuluunbaatar-Lussier, E., Kathleen Kerr and Luis Nacul. 2024 "Development of Epidemiological Research Guidelines for Myalgic Encephalomyelitis / Chronic Fatigue Syndrome in Canada" Preprints. https://doi.org/10.20944/preprints202405.1571.v1
Abstract
The Interdisciplinary Canadian Collaborative ME Research Network (ICanCME), established in 2019, aims to foster research in Canada and contribute to finding the causes and possible treatments for myalgic encephalomyelitis /chronic fatigue syndrome (ME/CFS), thereby reducing the impact of ME/CFS on the health of Canadians. The main objectives of this paper are to suggest standards for ME/CFS research for the collection of data from participants (Recommended Data Elements) and to consider other factors, such as design, language, cultural issues, equity, and diversity. Consensus of the relevant contents of this research guideline was reached during the ICanCME working group meetings and were based on existing guidelines. Members of the working group contributed to guideline development based on their respective expertise. The proposed research guidelines could improve research quality and advance knowledge in the field of ME/CFS, and ultimately benefit ME/CFS patients.
Keywords
myalgic encephalomyelitis or chronic fatigue syndrome (ME/CFS), research guidelines, standardization of data collection, Canadian
Subject
Public Health and Healthcare, Other
Copyright:
This is an open access article distributed under the Creative Commons Attribution License which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
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