Preprint Article Version 1 Preserved in Portico This version is not peer-reviewed

Estimating the Burden Among Informal Caregivers of Stroke Survivors in East Coast Peninsular Malaysia: A Short-Term Longitudinal Study

Mohd Azmi Bin Suliman
* ORCID logo ,
Xin Wee Chen
,
Mohd Ismail Ibrahim
ORCID logo ,
Kamarul Imran Musa
* ORCID logo ,
Nurfaten Hamzah
,
Iliatha Papachristou Nadal
ORCID logo ,
Feisul Idzwan Mustapha
,
Mohd Zulkifli Abdul Rahim
,
Norsima Nazifah Sidek
ORCID logo ,
Jafri Malin Abdullah
ORCID logo ,
Sureshkumar Kamalakannan
ORCID logo
Version 1 : Received: 30 September 2022 / Approved: 8 October 2022 / Online: 8 October 2022 (05:08:31 CEST)

How to cite: Bin Suliman, M.A.; Chen, X.W.; Ibrahim, M.I.; Musa, K.I.; Hamzah, N.; Nadal, I.P.; Mustapha, F.I.; Abdul Rahim, M.Z.; Sidek, N.N.; Abdullah, J.M.; Kamalakannan, S. Estimating the Burden Among Informal Caregivers of Stroke Survivors in East Coast Peninsular Malaysia: A Short-Term Longitudinal Study. Preprints 2022, 2022100094. https://doi.org/10.20944/preprints202210.0094.v1 Bin Suliman, M.A.; Chen, X.W.; Ibrahim, M.I.; Musa, K.I.; Hamzah, N.; Nadal, I.P.; Mustapha, F.I.; Abdul Rahim, M.Z.; Sidek, N.N.; Abdullah, J.M.; Kamalakannan, S. Estimating the Burden Among Informal Caregivers of Stroke Survivors in East Coast Peninsular Malaysia: A Short-Term Longitudinal Study. Preprints 2022, 2022100094. https://doi.org/10.20944/preprints202210.0094.v1

Abstract

Taking care of stroke survivors can be taxing, however, it was understudied in Malaysia. This study aims to describe the burden of informal stroke caregivers within three months after hospital discharge. A longitudinal study design was conducted. Acute stroke survivors and their informal caregivers were recruited prior to hospital discharge, and the caregivers were interviewed by phone. Self-reported caregiver burdens were measured with Zarit Caregiver Burden Interview – Malay version (MZBI) and Caregiver Assessment of Function and Upset – Malay version (Malay-CAFU). The MZBI and Malay-CAFU scores were collected four times within three months. A total of 85 stroke survivors and 155 informal caregivers were recruited, with 58.1% of the caregivers were female. The stroke survivors had two caregivers on average. The mean (SD) scores for the three scales show a reduction, from 27.42 (12.73) in the first week to 17.77 (11.20) in the third month for MZBI, from 1.14 (0.94) to 0.62 (0.64) for instrumental activities of daily livings (IADL) of Malay-CAFU upset scale and 1.36 (1.00) to 0.78 (0.65) for activities of daily living (ADL) of Malay-CAFU upset scale in the same period. Stroke survivors may have several caregivers, usually their spouses or children. Within a short period, the caregiver’s burden was reduced. Early psychosocial support to alleviate the caregiver burden may be necessary.

Keywords

Stroke; informal caregiver; burden; Zarit Caregiver Burden Interview; Caregiver Assessment of Function and Upset; Malaysia

Subject

Public Health and Healthcare, Nursing

Copyright: This is an open access article distributed under the Creative Commons Attribution License which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.

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