Preprint Article Version 1 Preserved in Portico This version is not peer-reviewed

Unauthentic Information about Celiac Disease on Social Networking Pages: Is It a Matter of Concern in Celiac Disease Management?

Version 1 : Received: 14 October 2022 / Approved: 17 October 2022 / Online: 17 October 2022 (12:55:58 CEST)

How to cite: Verma, A.K.; Quattrini, S.; Serin, Y.; Monachesi, C.; Catassi, G.N.; Galeazzi, T.; Gatti, S.; Makharia, G.K.; Lionetti, E.; Catassi, C. Unauthentic Information about Celiac Disease on Social Networking Pages: Is It a Matter of Concern in Celiac Disease Management?. Preprints 2022, 2022100240. https://doi.org/10.20944/preprints202210.0240.v1 Verma, A.K.; Quattrini, S.; Serin, Y.; Monachesi, C.; Catassi, G.N.; Galeazzi, T.; Gatti, S.; Makharia, G.K.; Lionetti, E.; Catassi, C. Unauthentic Information about Celiac Disease on Social Networking Pages: Is It a Matter of Concern in Celiac Disease Management?. Preprints 2022, 2022100240. https://doi.org/10.20944/preprints202210.0240.v1

Abstract

Facebook (FB) is the most popular online networking platform. There are several FB pages dedicated to spreading awareness about the Celiac disease (CD). To get the latest information, a huge number of CD patients follow Celiac disease Facebook (CD-FB) pages. Such pages frequently post beneficial information. However, very less is known if they provide appropriate information to CD patients. We conducted this study to know if CD-FB pages spread misleading information to CD patients. CD-FB pages from three celiac-influenced countries were explored using the FB platform and Google search engine. From October 2021 to April 2022, a total of 147 CD-FB, Italy (n=63), the USA (n=46), and India (n=38), were found eligible. Of them, 13% of pages (followers Mean±SD; Italy 2478±2011; USA 12635±12486; India 667±313) shared misleading information, particularly about gluten-free ingredients, and treatment of CD. In total,16% of CD-FB pages discussed alternative treatments option. Surprisingly, 7% of pages (followers Mean±SD; USA 23800±10465; India 628±333) supported alternative treatments for CD. CD-FB pages are useful for disseminating celiac-related information. While most of such pages provide useful information, a few pages sometimes contain misleading information. CD patients must consult their treating unit before following any uncertain information posted on CD-FB pages.

Keywords

celiac disease; gluten-free diet; facebook; gluten-free ingredients; misleading information; alternative treatment

Subject

Medicine and Pharmacology, Gastroenterology and Hepatology

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