Preprint Article Version 1 Preserved in Portico This version is not peer-reviewed

Assessing the Acceptability of a Co-produced Long COVID Intervention in an Underserved Community in the UK

Version 1 : Received: 16 November 2021 / Approved: 19 November 2021 / Online: 19 November 2021 (15:00:47 CET)

How to cite: Fowler-Davis, S.; Young, R.; Maden-Wilkinson, T.; Hameed, W.; Dracas, E.; Hurrell, E.; Bahl, R.; Kilcourse, E.; Robinson, R.; Copeland, R. Assessing the Acceptability of a Co-produced Long COVID Intervention in an Underserved Community in the UK. Preprints 2021, 2021110368 (doi: 10.20944/preprints202111.0368.v1). Fowler-Davis, S.; Young, R.; Maden-Wilkinson, T.; Hameed, W.; Dracas, E.; Hurrell, E.; Bahl, R.; Kilcourse, E.; Robinson, R.; Copeland, R. Assessing the Acceptability of a Co-produced Long COVID Intervention in an Underserved Community in the UK. Preprints 2021, 2021110368 (doi: 10.20944/preprints202111.0368.v1).

Abstract

Background: The COVID-19 pandemic has disproportionately affected people from more deprived communities. The experience of Long Covid is similarly distributed but very few investigations have concentrated on the needs of this population. The aim of this project was to co-produce an acceptable intervention for people with Long Covid, living in communities recognised as more deprived. Methods: The intervention was based on a multi-disciplinary team using approaches from sport and exercise medicine and functional rehabilitation. The co-production process was undertaken with a stakeholder advisory group and patient public involvement representation. This study identified participants by postcode and the indices of multiple deprivation (IMD); recruitment and engagement were supported by an existing health and wellbeing service. A virtual ‘clinic’ was offered with a team of professional practitioners who met participants three times each; to directly consider their needs and offer structured advice. The acceptability of the intervention was based on the individual’s participation and their completion of the intervention. Results: Ten participants were recruited with eight completing the intervention. The partnership with an existing community health and wellbeing service was deemed to be an important way of reaching participants. Two men and six women ages ranging from 38 to 73 were involved and their needs were commonly associated with fatigue, anxiety and depression with overall de-conditioning. None reported serious hardship associated with the pandemic although most were in self-employment/part-time employment or were not working due to retirement or ill-health. Two older participants lived alone, and others were single parents and had considerable challenges associated with managing a household alongside their Long Covid difficulties. Conclusions: This paper presents the needs and perspectives of eight individuals involved in the process and discusses the needs and preferences of the group in relation to their support for self- managed recovery from Long Covid.

Keywords

Long Covid; rehabilitation; virtual methods; multi-disciplinary team

Subject

MEDICINE & PHARMACOLOGY, Sport Sciences & Therapy

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