Working Paper Concept Paper Version 2 This version is not peer-reviewed

EUROPEAN ME NETWORK (EUROMENE) Expert Consensus on the Diagnosis, Service Provision and Care of People with ME/CFS in Europe

Version 1 : Received: 27 September 2020 / Approved: 28 September 2020 / Online: 28 September 2020 (14:14:02 CEST)
Version 2 : Received: 15 October 2020 / Approved: 16 October 2020 / Online: 16 October 2020 (08:58:18 CEST)

How to cite: Nacul, L.; Authier, F.J.; Scheibenbogen, C.; Lorusso, L.; Helland, I.; Alegre Martin, J.; Sirbu, C.A.; Mengshoel, A.M.; Polo, O.; Behrends, U.; Nielsen, H.; Grabowski, P.; Sekulic, S.; Sepulveda., N.; Esteves Lopez, F.; Zalewski, P.; Pheby, D.; Castro-Marrero, J.; Sakkas, G.K.; Bergquist, J.; Capelli, E.; Brandslund, I.; Cullinan, J.; Krumina, A.; Murovska, M.; Vermuelen, R.; Lacerda, E. EUROPEAN ME NETWORK (EUROMENE) Expert Consensus on the Diagnosis, Service Provision and Care of People with ME/CFS in Europe. Preprints 2020, 2020090688 Nacul, L.; Authier, F.J.; Scheibenbogen, C.; Lorusso, L.; Helland, I.; Alegre Martin, J.; Sirbu, C.A.; Mengshoel, A.M.; Polo, O.; Behrends, U.; Nielsen, H.; Grabowski, P.; Sekulic, S.; Sepulveda., N.; Esteves Lopez, F.; Zalewski, P.; Pheby, D.; Castro-Marrero, J.; Sakkas, G.K.; Bergquist, J.; Capelli, E.; Brandslund, I.; Cullinan, J.; Krumina, A.; Murovska, M.; Vermuelen, R.; Lacerda, E. EUROPEAN ME NETWORK (EUROMENE) Expert Consensus on the Diagnosis, Service Provision and Care of People with ME/CFS in Europe. Preprints 2020, 2020090688

Abstract

Designed by a group of ME/CFS researchers and health professionals, the European Network on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (EUROMENE) has received funding from the European Cooperation is Science and Technology (COST) (https://www.cost.eu/cost-actions/what-are-cost-actions/ ) - COST action 15111 - from 2016 to 2020. The main goal of the Cost Action was to assess the existing fragmented knowledge and experience on health care delivery for people with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in European countries, and to enhance coordinated research and health care provision in this field. We report on the recommendations for clinical diagnosis, heath services and care for people with ME/CFS in Europe, as prepared by the group of clinicians and researchers from 22 countries and 55 European health professionals and researchers, who have been informed by people with ME/CFS (https://www.cost.eu/actions/CA15111/#tabs|Name:overview).

Keywords

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome; diagnosis; Health services; clinical care

Subject

Medicine and Pharmacology, Neuroscience and Neurology

Comments (1)

Comment 1
Received: 16 October 2020
Commenter: Luis C Nacul
Commenter's Conflict of Interests: Author
Comment: We are adding 3 relevant references, with slight amendments to the text, add conflict of interest from one of the authors and correcting some gramathical and spelling errors (including in author's names) 
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