di Gangi, C.; Hermans, M.; Rayyan, M.; Eyskens, F.; Allegaert, K. What Mothers Know About Newborn Bloodspot Screening and the Sources They Use to Acquire This Knowledge: A Pilot Study in Flanders. Children2023, 10, 1567.
di Gangi, C.; Hermans, M.; Rayyan, M.; Eyskens, F.; Allegaert, K. What Mothers Know About Newborn Bloodspot Screening and the Sources They Use to Acquire This Knowledge: A Pilot Study in Flanders. Children 2023, 10, 1567.
di Gangi, C.; Hermans, M.; Rayyan, M.; Eyskens, F.; Allegaert, K. What Mothers Know About Newborn Bloodspot Screening and the Sources They Use to Acquire This Knowledge: A Pilot Study in Flanders. Children2023, 10, 1567.
di Gangi, C.; Hermans, M.; Rayyan, M.; Eyskens, F.; Allegaert, K. What Mothers Know About Newborn Bloodspot Screening and the Sources They Use to Acquire This Knowledge: A Pilot Study in Flanders. Children 2023, 10, 1567.
Abstract
To learn what mothers know on newborn bloodspot screening (NBS), the procedure, and sources used, a pilot study was performed. An online questionnaire was developed, with a first part fo-cused on characteristics and the NBS procedure, a second on knowledge, information sources, and health care providers (HCP). This questionnaire was accessible until 200 answers were received. Characteristics of respondents were representative for the population. Mothers recalled verbal consent in 69.5%, 12.5% did not, 18% stated that no consent was requested. The ‘knowledge’ part contained 12 closed questions, 5 multiple-choice questions on sources, and assessment (5-point Likert) of the information transfer. The mean knowledge level was 7.2/12. Screening concepts (consequences, likelihood, sensitivity, carrier) and absence of notification of normal findings were well known. The fact that NBS is not compulsory and post-analysis sample handling were poorly known. Key HCPs were midwifes (80.5%) and nurses (38.5%). When the leaflet (44%) was pro-vided, the majority read it. Mean Likert scores were 3.36, 3.38, 3.11 and 3.35 (clarity, timing ap-propriateness, sufficiency, usefulness). The knowledge level and consent practices were reasonable well. Key HCP were midwives and nurses, leaflets were supporting. This should enable a quality improvement program to a sustainable NBS program in Flanders.
Medicine and Pharmacology, Pediatrics, Perinatology and Child Health
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